Genetics: Services Plan for the State of Wisconsin: Appendix VI

Genetic Services Plan for Wisconsin - Appendix VI:
Key Player Cluster Activities

Key Player	Cluster	Activities
Children with Special Health Care Needs Regional Centers	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Consumer Advocacy Groups	1: Advisory Council Creation	Creation of an advisory council for genetic services
	2: Increasing State Presence	Development of a State program in genetics Create Consumer Liaison position
	3: Service - Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	7: Service--Collaboration	Formalize relationships Explore collaborations
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Consumers	1: Advisory Council Creation	Creation of an advisory council for genetic services
	2: Increasing State Presence	Development of a State program in genetics Create Consumer Liaison position
	3: Service - Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	7: Service--Collaboration	Formalize relationships Explore collaborations
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Council on Birth Defects Prevention and Surveillance	1: Advisory Council Creation	Creation of an advisory council for genetic services
Department of Health and Family Services	1: Advisory Council Creation	Creation of an advisory council for genetic services
	2: Increasing State Presence	Development of a State program in genetics Create Consumer Liaison position
	3: Service--Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	4: Service--Insufficient Genetics Workforce	Take census Estimate current and future needs Identify means to encourage training programs
	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Department of Regulation and Licensing	3: Service--Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
Division of Healthcare Financing	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
Educational Institutions including: Medical Schools Universities Schools of Allied Health	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Educators	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Genetic Alliance	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Genetics Care Providers	1: Advisory Council Creation	Creation of an advisory council for genetic services
	2: Increasing State Presence	Development of a State program in genetics Create Consumer Liaison position
	3: Service - Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	4: Service--Insufficient Genetics Workforce	Take census Estimate current and future needs Identify means to encourage training programs
	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	7: Service--Collaboration	Formalize relationships Explore collaborations
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Healthcare Payers	1: Advisory Council Creation	Creation of an advisory council for genetic services
	3: Service--Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	4: Service--Insufficient Genetics Workforce	Take census Estimate current and future needs Identify means to encourage training programs
	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	7: Service--Collaboration	Formalize relationships Explore collaborations
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Healthcare Providers - other	1: Advisory Council Creation	Creation of an advisory council for genetic services
	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	7: Service - Collaboration	Formalize relationships Explore collaborations
	8: The New Genetics	Recommendations for primary care education Explore alternative counseling models Develop assurance of integration of testing into health promotion
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Legislators	1: Advisory Council Creation	Creation of an advisory council for genetic services
	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
Local Hospitals and Clinics	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Local Public Health Departments	1: Advisory Council Creation	Creation of an advisory council for genetic services
March of Dimes	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Media	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Medicare/Medicaid	5: Service--Finance	Assess options for funding Seek legislative mandate re reimbursement Assure genetic counselor billing Identify alternative sources of funding Assess financial obstacles
National Coalition for Health Professional Education in Genetics	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
National Organizations such as: American College of Medical Genetics (ACMG) American Society of Human Genetics (ASHG) National Society of Genetic Counselors (NSGC)	3: Service--Assessment and Quality Assurance	Define minimum standards for genetics centers Develop quality assessment models Generate quality assessment and care guidelines Review cost-consequence data Review published guidelines for care Review published guidelines for reimbursement Develop position statement re establishing standards of care Explore methods of assessing quality Insure licensing of genetic counselors Insure certifying care providing centers
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Newborn Screening Advisory Group	1: Advisory Council Creation	Creation of an advisory council for genetic services
State Plan Workgroup	1: Advisory Council Creation	Creation of an advisory council for genetic services Wisconsin Association for Perinatal Care
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement
Wisconsin Hospital Association	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
Wisconsin Public Health Association	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement Wisconsin State Medical Society
Wisconsin State Medical Society	6: Service--Access	Disseminate Plan and subsequent materials Position paper on access Handbook of available genetic services in Wisconsin Sponsor `genetic health summit' Issues of telemedicine
	9: Education	Website creation Expansion of educational programs Identification of alternative strategies Consider W-ORD creation Identify methods of educational improvement Assess genetic education requirement

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