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Wisconsin Newborn Screening Laboratory: Galactosemia

Health Professionals Guide to Newborn Screening

Galactosemia

Autosomal recessive disorder of galactose metabolism. The genetic disturbance is expressed as a cellular deficiency of either, galactose-1-phosphate uridyl transferase (classic form), galactokinase, (variant) or uridine diphosphate galactose 4 epimerase (variant) - the enzymes catalyzing the reaction by which galactose is converted to glucose. The main dietary source of galactose is lactose, the principle carbohydrate in milk.

Prevalence (WI): 1:60,000
Analyte Measured: Galactose-1-Phosphate Uridyl-1-Transferase (GALT)
Abnormal Levels: Lack of GALT enzyme activity
Feeding Effect: None (See COMMENT below)
Timing Effect: < 24 hours of age: Repeat at two weeks
³ 24 hours of age: Results are valid
Confirmation: Quantitative plasma metabolites
Quantitative enzyme activity
Mutation analysis

Treatment:

Elimination of dietary lactose, including breast milk, cow’s milk and/or lactose-based infant formula.

COMMENT: Although detection of classical galactosemia using the GALT enzyme test is not depended upon the feeding status, galactosemic babies that have been transfused will appear to have normal enzyme activity. This is due to the GALT activity in the red cells. To help identify galactosemic babies that have been transfused, a 2nd tier metabolite (galactose and galactose-1-phosphate) assay is performed on those specimens. If the metabolite levels are abnormal the baby will be reported as positive for galactosemia.    

Screening for galactosemia using the GALT enzyme test will NOT detect the variant forms of galactosemia (galactosekinase or uridine diphosphate galactose 4 epimerase).

Information on treatment centers is also available on this site.


For information about other screened disorders, click on the next page button, or follow one of these links:

Argininosuccinic Acidemia (ASA) Hemoglobin Variants
Biotinidase Deficiency Homocystinuria
Congenital Adrenal Hyperplasia Hypermethioninemia
Congenital Hypothyroidism Hyperphenyalaninemia
Citrullinemia (Types I & II) Maple Syrup Urine Disease
Cystic Fibrosis Organic Acidemias (14)

Fatty Acid Oxidation Disorders (12)

 

Phenylketonuria
(Includes Biopterin Cofactor defects
of regeneration and biosynthesis)

Galactosemia Severe Combined Immune Deficiency (SCID)
Hemoglobin S-Beta Thallassemia Sickle Cell Disease
Hemoglobin S/C Disease Tyrosinemia (Types I,II, & III)

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